12 Sep 2014 the epic journey to get a James Bond watch that even tells the time


oh wow the beach looks lovely today! so nice to walk a bit and today, I’m catching a bus at the half way point because i don’t want to push my luck after doing over 17000 steps yesterday!

what a trek I’ve been on just to walk to town and get a james bond watch, it is pretty awesome though! it even tells the time :)

normally when I walk that far, I get some tightness in my legs even with sativex so it was good yesterday that I was able to go so far

I don’t think I even sat down once the whole way there. It was my plan to catch a bus at some point but by the time my gps said I was 30 minutes away and the timetable said the bus was 40 minutes away, I just walked it

and oh my brothers wife, she’s being such a good host and I have to watch it or else I’ll start expecting my missus to make a cup of tea on demand

although, I think she will tell me what to do with that! haha

it is nice to have someone to relate to when i get the funny turns that I get on my own and have only my own internal perspective to figure it out

Martina and I came to the conclusion that it was the codeine that i had in the Continue Reading

10 Sep 2014 at the koala hospital and oh the sleep


today I’m at the koala hospital and you might just be able to see in the distance some koalas

we have a better view from the driveway of my brothers house! we have a local koala that likes to roam the streets and clim the trees

just yesterday we saw it jump from one branch to the other

and what about last night? oh boy did I do some extra walking and it was too much for poor legoniums and I ended up having funnies in my arm and had trouble speaking last night

but last night after my middle of the nigh peepee, I took the last sleeping pill that I was saving and I ended up getting a really good sleep and woke up feeling really excellent!

I’m not going to push my luck though so no long walk today and that’s why I’m at the koala hospital with my lovely niece who suddenly go shy and also my wonderful sister in law who is doing a grand job making sure I don’t do too much and even makes everything to eat and drink. nice one brother, good job on the marriage! :)

9 Sep 2014 come fly with me, fly fly away


yeehah! I’m off flying with my little brother around Port Macquarie and we even saw a whale out in the ocean.

I can see now why people who report the news from planes speak so loud, it was really noisy and I though having the mic next to my mouth was enough

and I didn’t want to disturb my brother because it was a new plane to him and he needed to concentrate

oh god it was awesome and also very windy up there, you don’t get the kind of wibbly wobbly in a big plane but boy oh boy do you on a little plane!

it was so good I even forgot to speak for a bit!

awesome landing too with no bounce, oh so proud of my little brother!

8 Sep 2014 martias magical coconuts for energy story continuing #multiplesclerosis


I’m at a different beach today a little further away so I can put coconut oil and water to the test to see if it helps with energy

it’s all my sister in laws fault, gawd bless her. She’s asked me a few times if I wanted to try some coconut oil because she has seen in a few places the benefits of it as well as the energy that is purported to come from it

I’ve only had it a few days now and I almost feel it, so today I decided to see how it would be in terms of sprays I needed of sativex on a 5 mile walk

I did notice that yesterday that I sprayed less and today it was the same, even less sprays or need to spray

now this could all be psychological or wishful thinking but I’m willing to give it some more days of doing it and see if it can be incorporated in to my daily regime

and oo0-er, do you see the little hole with ball things? how strange, someone has been tidying up downstairs! (probably my missus judging by the mess)


7 Sep 2014 promising news on yoga and nintendo wii fits my history


I’m out at the beach today to go for a long walk along the waters edge, it’s starting to rain though but if I wait 5 minutes then the sun will come out again!

(btw.. had a lovely lunch at Port Macquarie town)

so today I am talking about some of the alerts that come in to my inbox regularly because of the system I have set up with google to notify me anytime there is mention of multiple sclerosis or other terms that are used for the condition

after dismissing the ones that I can clearly see are there to move the reader into a sales funnel and eventually get them to buy some miracle reversing diet or supplement

then I get to the interesting ones and after I see the same thing by different people or sites mentioned a few times I can look in to it

yoga is one, not the simple one but the proper program with centering and meditating programs that go on for a while and are studied properly

they do seem to have beneficial effects, I kind of knew that anyway but it’s nice to see it on paper. Although, it is still predominantly anecdotal evidence.

what isn’t anecdotal is the effects on the brain of doing particular types of exercise and once such study investigated how using a Wii balance board can help to create new pathways in the brain<br Continue Reading

6 Sep 2014 peak coffee labs tour from green bean to cup


Here I am at award winning Peak Coffee labs where they import beans, roast them and pack them and even serve them as coffee.

Up to and over 25000 cups a week go through just this location and tens of thousands more around NSW, Queensland and Sydney…and let me tell you, it’s awesome coffee! No wonder they have had the peoples choice award for four years in a row

A bit longer video today but I wanted the complete tour and learned things like how long it takes to roast the beans and even how even decaffeinated coffee can still be a good choice

A big thanks to Andrew Veitch for giving me the tour of Peak Coffe Labs on Jambali road, port Macquarie

5 Sep 2014 first part of my adventure the plane journey and lamb story


how about I tell you about the adventure that I had coming to the adventure?

it was great! although you’ll find out how it could have gone all squirly when they told me that the lady behind me was the one to take the last lamb dinner

but guess what I got instead?

and the entertainment system was awesome, it was so good that the course I was planning on watching while I was flying go totally ignored!

4 Aug 2014 I capture some dolphins surfing on todays video


I’m out for a walk along the coast and noticed that the waves got bigger every now and then so I filmed it and happened to catch some dolphins surfing in the waves!

It’s a bit hard to see with this camera but it was a wonderful experience to watch!

and after posting some exciting news about some research that I saw this morning, Richelle commented and it sounded like shes just be diagnosed but now I see it again I can see she was saying that she just got news of rapid progression rather than just go news of diagnosis

but the offer of letting her ask anyone anything on the facebook page is still open, I hope you don’t mind, I just said you’d be there on my page if she needs to ask anything! :)

and I’ve asked and answered it before but what would your advice be to a newly diagnosed person?

3 Sep 2014 cryogenically stored stem cells but are they worth it? #multiplesclerosis


I posted a link earlier to an article claiming that a cure is close but I hear that all the time!

and one part of the article was going on about stem cell transplants and a guy who’d had one mentioned something about some doctor but instead of getting all evangelical as some people who’ve had a similar treatment go like, he gently mentioned a doctors name and said he had had good results

yes, that’s the way I want someone to mention something to do with treatment, not get all in my face with stuff but give me enough information so that I might want to find out myself when the mood takes me

I had actually seen the doctors work in question but to me, all treatments can show benefits but there isn’t enough data to be more than anecdotal evidence

my own remission and ability to walk again and come to Australia could also be a reason to get evangelical and preachy about the benefits of proper non-exlusionary diet and exercise coupled with CBD laden medication (#sativex)

but again, it’s anecdotal, not science

but I got reminded about it again today with my brother mentioning that he and his wife cryogenically stored some core stem cells and blood when their daughter was born and generously offering to provide them if it was something I wanted to pursue

I’m not so sure that at this Continue Reading

tacking point lighthouse in Port Macquarie is bloody windy!

so I went for a walk and ended up at tacking point lighthouse and nearly got blown off! (the cliff)

it was extremely gusty here, what a view though!