21 Oct 2014 a visit to Katrina Barkers boutique

http://facebook.com/MSVideoDiary

I had a lovely time going around the shop at Katrina Barker Designs to see all the lovely jewellery and clothes that she designed on her travels around India and the Himalayas.

You can see some of the gorgeous pieces that are on display ready for the opening on Thursday 23 October , all designed by herself and some are made by her school in India for destitute children and orphans who then have them sold in her shops to keep enable the whole thing to be self sufficient

I even knocked some stands over , oops! but I was totally let off due to my disabled card being played :)

isn’t she lovely? what a great girl and she was so welcoming to everyone that comes to visit and look around (even if they don’t spend anything)

she’s my new BFF in Australia :)

21 Oct 2014 a visit to Katrina Barkers boutique

http://facebook.com/MSVideoDiary

I had a lovely time going around the shop at Katrina Barker Designs to see all the lovely jewellery and clothes that she designed on her travels around India and the Himalayas.

You can see some of the gorgeous pieces that are on display ready for the opening on Thursday 23 October , all designed by herself and some are made by her school in India for destitute children and orphans who then have them sold in her shops to keep enable the whole thing to be self sufficient

I even knocked some stands over , oops! but I was totally let off due to my disabled card being played :)

isn’t she lovely? what a great girl and she was so welcoming to everyone that comes to visit and look around (even if they don’t spend anything)

she’s my new BFF in Australia :)

20 Oct 2014 our adventure up the mountain to see the falls

http://facebook.com/MSVideoDiary

we drove for mile and miles to go up the knobby mountain to see the waterfalls where we messed about like a couple of brothers (well, we are brothers) and had such a good time

we even went over to the other side to see the source of the falls and my brother risked life and limb to get the money shot over the edge of the falls and very nearly fell himself

oh my god it was beautiful there, we really had such a nice time of the day and later when we went for lunch a dragon tried to eat a family that was having a picnic, I didn’t get that on video but I did take a lot of pictures so maybe I’ll show you them when they get uploaded

what a great time in Australia we’re having and it’s only a few days until I have to travel home again and save up the spending money for next year and do it all again

that is if I manage to keep my faculties with me, such a good reason to try and keep healthy for another year!

18 oct 2014 a trip to the lighthouse with my brother

http://facebook.com/MSVideoDiary

so me and my little big brother went to the lighthouse to show you what the fantastic view was like

we had just gone to lunch to see the wonderful Sam Broadbent perform at The Beach House and afterwards took a trip up the hill

apparently you can see some whales in the sea but the camera viewing angle isn’t good enough for you to see them so you’ll have to take our words for it!

I can even get up the steps all on my own so I feel bloody awesome after a minor hiccup of bastardness this morning which was only hunger related so not so bad really

you can even see my brothers house from here at the top of the hill, so good to have such a great time here!

17 Oct 2014 in a hurry because I forgot my meds and didnt want to miss the bus

http://facebook.com/MSVideoDiary

I’m in a hurry so i can catch the bus after forgetting to take my meds with me and so I had to go back up the hill to get them and then come back but go a bit faster so I don’t miss the bus

I’m on the way to the Lady Katrina of Katrina Barker Designs , I recommend you go and visit her page and see what shes up to. We’re going for lunch with her boyfriend so that’ll be nice! (turns out he didn’t come)

but its bloody busy on the road, how come? it’s usually really quiet when I walk this way.

and what should I talk to you about? how about Dr. Martina and her liquid diazepam..

but I’m worried about making it to shelley beach at 20 minutes past so I can make it to the bus stop in time and it’s not like they arrive fully on the dot to get the bus because this is Australia and they might even be early or late

there’s a little problem with the mic having connection issues but you can hear the monkeys , although there isn’t any but don’t tell the American tourists

and evil koalas? saw one running up the road holding up traffic

but hear about my new book about the glassblower which is a set of German girls in 1890 who have to work for a pittance Continue Reading

16 Oct 2014 oh the awesome that is a drug to tide me over

http://facebook.com/MSVideoDiary

sunny again so i can have the whole beach trip to myself and I’m on my way to go and have lunch with martinas friend katrina who runs a pop up shop of all her fashion and jewellery that she designs

the stabby feeling is gone with the drug that Dr. Martina gave me but I’m not sure if it is the drug or the fact that I know I’ve got something to have

I’ve only got 9 days left but I’m kinda like I want to get back to the rain and storms of Blighty but also not, do you know what I mean?

it’s nice to know someone else here, although my brother and sister are lovely enough it’s so nice to have someone else to annoy, um, be friends with!

and oh gawd bless my missus for helping me through the disaster of having no medication but it kind of feels good to know that the drugs actually work and I’m not just making it up coz they make me a little high sometimes

it’s not really dependence because I’m not that kind of person, but still I do need them to survive.

but do I sound any different?

the thing that is different is the spiral stories that go on in my head, not even a bit so that tells me that diazepam is doing it’s job. apparently it makes you more happy
<br Continue Reading

15 oct 2014 panic over with the introduction to diazepam for walking bliss

http://facebook.com/MSVideoDiary

up the big path today, and some big steps

oh wow, what a panic/no panic situation that was rectified by drugs!

yesterday was utterly poop after only having one spray of sativex to tide me over, gosh it was terrible indeed

I had too much noise (well, to be fair it was the normal noise I have been putting up with) and I had to lock myself away in my room so I didn’t explode

hyperacusis! too much sound was doing my head in

but now I don’t have to panic because my wonderful sister in law had some medication that could help

she has some diazepam and that used to be prescribed for MS so I thought it might be nice to try some and see how it went

and that is good so I can save the 3 or 4 sprays of sativex for the flight back home

the dosage I’m going to have is to have 5mg in the morning and once in the afternoon and then my tizandine at night

I don’t feel too different, well the thing that matters is my lack of feeling in my leg so it seems as though it is doing it’s job

see the view and see the arch of princes!

although it’s not exactly the same with diazepam, it’s good enough to do for the rest of the holiday

14 oct 2014 cause and effect of not having medication available

http://facebook.com/MSVideoDiary

I am on a different path today, I just got dropped off on the top of the hill and I will walk the rest of the way to town on the path because it rained last night and it might be a bit harder to walk on the beach

oh my this is the start of the less Sativex consumption!

it’s already being missed, I can tell because I had very little sleep last night after my walk yesterday which pooped me right out!

I was up at 2.30am for a pee, no strangeness there except I didn’t know the time and after tossing and turning for a few to very few minutes I looked at the time and it was only 2.30! arrg

so I took a sleeping pill seeing as it was early enough and then proceeded to defy physics and stay awake for too long and in the end started reading my book which, when it’s a scary (ish) book and the room is pitch black, is not conducive to sleeping either!

and then , WOW something jumped out of the bushes and scared the beejeebus out of me :)

it’s a shame NICE has not allowed sativex to be on the NHS because it’s not just the spasticity that it relieves but the associated bullshit that comes along with it

M-spasticity-tired muscles-fatigue-grumpines-depression.. etc

a real cause and effect chain going on and it Continue Reading

13 Oct 2014 oh no I have run out of sativex plan for the worst and hope for the best

http://facebook.com/MSVideoDiary

I’m gonna be planning for the worst but hoping for the best because my sativex is running out and I think that I might not have enough for the rest of the holiday!

commence panic!

although it isn’t the end of the world because I have this bloody awesome surroundings to wander around and a brilliant brother and spectacular sister in law and not forgetting my beautiful niece to make me feel better

I maybe have 5 or 6 days left at just 2 sprays a day and I’ve got 12 days left on holiday so it appears I might have to enable beer therapy :)

I will miss it, I even missed it today on my walk but if I can’t go walking at least I can go in the swimming pool instead.

it’s almost warm enough now and as long as it doesn’t get too rainy or windy then I should be just fine you know!

12 oct 2014 meditating in the garden and a wild herpe appears

http://facebook.com/MSVideoDiary

I am in the garden today because I’m having a quiet day after doing too much yesterday.

I woke up this morning and I had a wild herpe on my lip which tells me that yesterdays activities were too much for me.

Luckily it was up here and not down there because that would have meant all sorts of shenanigans.

yesterday we did the pool cover and then I went for a walk and all was good but after walking around the shopping center and all sorts following Michael who was on the phone for boomin ages

and then coming home and cooking chilli and also baked potatoes.. arrgh, it was all too much

so it’s entirely my brothers fault.. hahah, it’s nice to have a brother to blame :)

oh it’s so nice here to do the meditation to this music while I have the whole place to myself, the wind in the trees and the wonderful music is so great for mindfulness

and I have to follow Matron Martinas advice and be diligent with my cups and no snogging anyone (as if!), it’s someone elses house so I will follow the rules of the abode :)

I’m off to finish the track in peace and quiet (and tranquliteh) :)

have a great sunday everyone :)